It’s only Thursday and this week has already been a whirlwind. Now that most of my tests and scans are done, a treatment plan is starting to come together. I am most comfortable when I know exactly what is happening, and have a plan and an end goal. So just the fact that we’re getting things done and moving towards a plan makes me feel sane.
So far this week:
- My PET scan did not show any bone mets (Me-1, Cancer-0).
- My HER2 results came back negative, which means I qualify for the trial (Me-2, Cancer-0).
- I made it through 3 weeks of a very low carb and a meat, fish, dairy, and processed sugar free diet.
- I had an absolutely amazing birthday – thank you to everyone for making me feel so loved! My driveway was busy all day with flower deliveries, Edible Arrangements vans and UPS deliveries. My house now looks like a small flower shop (I posted some photos above) and I wouldn’t have it any other way! Among other things, I was also gifted (a-long-wished-for) Breville tea maker that brews my favorite teas at the perfect temperature for the exact correct amount of time – heaven!
- Tomorrow, I’m having a port-a-cath (port for short) implanted. (I know most people are probably not familiar with all the cancer terms – it’s become my third language – so I’ll do my best to provide links for additional explanations. A port is a small circle that will sit around my collarbone underneath my skin. It can be used for blood draws, IVs and administering chemo. Since my veins are pretty beat up from the chemo I had in 2012, a port is an easier option and beats being poked with needles 4-5 times every time a blood test or an IV is needed.
- Next week, I am:
- meeting with a generic counselor. Even though I tested negative for BRCA 1 and BRCA2 in 2012, they now have additional genes they can test for and supposedly BRCA1 and BRCA2 are more sensitive.
- that same day, I will start my treatment regimen. I have enrolled in a trial that combines Taxotere, a traditional chemo, and an experimental drug called indoximod. Indoximod is an IDO pathway inhibitor–you can read more about it here. It is a Phase III double-blind trial so there is a 50% chance I will be assigned to the placebo group, i.e. I will get a sugar pill. The first week, I will begin taking indoximod and continue for 14 days. The second week, I will get Taxotere. I rest during the third week and then start all over again.
That’s all for now…